I’m kind of frustrated and getting angry about all the people who keep bringing up all the other charities or issues that they want attention paid to and they get all bent out of shape that ALS is finally getting attention. I’ve heard the drought brought up and even it’s a white privilege issue but you know what? SO the FUCK what? Cancer always gets the attention. Stand up for cancer is coming up and there will be all kinds of whoopla about cancer or diseases like AIDS with the AIDS walk, both worthy but ALS has never gotten the attention… ever before and unlike Stephen Hawking most people don’t survive very long after diagnosis.
I’m watching someone I love with it now. Her partner and she struggle every day to get the care she needs and she needs 24 hour care. A year ago we thought it was arthritis…
Darswords 