Tag Archive: fibromyalgia. flares.



Fibromyalgia Mystery Finally Solved! | The Guardian Express.

 

Not sure I believe this one. What I can relate is that when the doctor decided to test my blood to see if my blood sugar was low she saw that I was a ‘bleeder’ I have always known that my fingertips were so sensitive that I had to keep my nails long. I gave up trying to teach myself guitar. I found staccato tunes on the piano painful. Typing on a typewriter hurt. If my hands get cold while preparing fruits or veggies for salads I was pretty much a basket case and couldn’t eat said foods for hours after.

That said. The pain I experience in a flare feels like my bones from tailbone to ankles are going to explode. The next step of a flare goes up into my shoulders and neck. Then arms and shoulder blades at the level of bra-strap start in. But the very worst of it isn’t a headache, thank God-dess I don’t get those, too! but a fog that is so permeating that I am unable to do anything at all. Even remembering to go to the restroom  slips my mind while in that fog. So did I just prove this latest study right? As I stated at the beginning, not sure. But it is something not to hear it is in my head! I am so tired of people showing and proving to me that they have overcome and thereby I am somehow less than they are! Do they think I like spending my life in bed? Do they realize how busy I used to be before this took over my life? Have they any idea how passionate I am about so many things that I can’t find the energy to enjoy? It is NOT depression! I am depressed because I can’t do stuff! Sorry for the whine! And no, I don’t do cheese: gluten-free/vegan!


Weather’s Influence on Fibromyalgia Symptoms. This.   I have a barometric pressure app on my tablet. Yes, it tells me the weather, the temperature and forecasts. My favorite part is the BP part. I don’t look at it much, until I start hurting very badly. Then I check and see if the BP is the cause. Sure as the world, the BP looks like a roller-coaster. On the other hand, if I am having a great day, I can look at the BP and it is close to flat-lining. So these studies are erroneous.


Another Fibromyalgia & Exercise Study. Sigh.. I have been turning down stories about this latest news because I felt it wasn’t true. The worse cases, most likely to be shot into flares by the exercise programs, either didn’t find it possible to follow through, or didn’t even start.

I try to be the person who exercises. I can’t stay with it. I have dreams of running. I can’t make it to the kitchen or bathroom without being dizzy and putting myself into a flare, especially when the weather is unstable. My husband and I start by just walking around our apartment complex. We feel excited when we can make one round. It is .10 of a mile. I used to walk a lot. Eight miles was nothing. I loved being outside. I used to love swimming. The big F hit and the only swimming I can do is in a hot springs pool.

Instead, to keep my mind active, I am on the internet all day or reading books. At least I am one step above curling up and sleeping all day. Those are the worst days. So I applaud myself for the small things I can do! Yay, me!

Diagnosis Diabetes


 

I recently noticed something about myself while playing a hidden objects game. To get the objects you needed to proceed through the game you had to revisit places you’ve been before. I sighed a huge sigh and said aloud, “Why do I have to go all the way back there to get this done?” Epitome of laziness? I asked myself. It was just clicks of the mouse to get there. No exercise was involved. But the only reason I was playing a game was because I had no energy at all. I had no incentive to do anything as my fibromyalgia was flaring so badly that I was only one blanket away from crawling under the covers and crying. But I am still looking at how tasks in real life don’t get done because there are so many steps to getting to the real goal. Depression plays a part in this. “What’s the use?” I asked myself. It’s not as though it matters to anyone else.

Then on Friday I got the diagnosis of diabetes and high cholesterol. Really? I am a vegetarian! Not a meat product goes in my mouth! And really, if you look at my family tree is it any surprise that I have it when everyone else did? I eat nothing like my forebears, high fat huge meals, tons of sugar. I rarely have sugar. So after some research I am finally giving up cheese and butter. I was nearly vegan before. Time to suck it up. But exercise?

I find walking BORING AS HELL! I find exercise in gyms BORING AS HELL! When I think about it, I want childhood back. I want a playground made for grown-ups. I want to swing high while singing to the top of my lungs. I want to play hop-scotch or jump rope with friends. I want to sit for hours playing jacks. I might even enjoy getting good at swinging from the rings and hand ladders (whatever those things were called). Four square with friends. Playing hide and seek! If I must I’d like to garden, a little. But I live in an apartment. I’d love to gather twenty cents walk two miles with my brother to the pool and swim ten cents a session then walk the two miles home. That wasn’t exercise. That was fun. But then the swimmer’s ear took over one of my favorite sports. The cold water causes flares now. So what do I do? Virtual life. That seems too stressful and too much effort.

Then I read the latest Dances With Fat and the comments her readers made. At least I am not alone in this journey. I am glad there are people who question the status quo.

Please don’t lecture me. I will delete such comments. But if you can help me find a way to my better health in a pleasant way, I promise to look at it. I hope something sticks. I hope this penny gets me a bubblegum.

Dances With Fat

Angry FrustratedI got this e-mail today:  “Dear Ragen,  I hate exercise – like I seriously hate it.  I know that research shows that there are a lot of benefits but the thought of spending hours in the gym just sounds miserable.  Should I just suck it up?  What if I hate exercise?  Do you think I should do it anyway?”

This is a question I get a lot.  First, there is a mistaken notion out there that because I talk about my life as a fathlete and I talk about what the research says about fitness, that I am “promoting” exercise or I think that people “should” exercise.  Sometimes this happens because I haven’t written things as clearly as I should have, sometimes I think it’s because people have issues around exercise and just seeing discussion about it triggers them which is totally understandable given how much it gets shoved down…

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