Tag Archive: fibromyalgia



SEEKING EQUILIBRIUM: TBT…PUMPED UP KICKS AND FEEDBACK LOOPS.


SEEKING EQUILIBRIUM: UPDATE ON LOW DOSE NALTREXONE.


Theories of Causes of Fibromyalgia | Fibromyalgia Treating.


http://www.cortjohnson.org/blog/2014/07/27/measure-blood-volume-chronic-fatigue-syndrome/


http://mba-healthcare-management.com/fibromyalgia/


Dar49 Daily.

Late Wake


I woke yesterday at 2pm. I got nothing done. Thought it was the stupidest thing I had done since I was a teen. But today I woke at 3pm. Geez. Okay, so part of it is the chronic fatigue/fibro that makes me so tired and once I get awake I try to do all I can to feel normal. But that means I see the sunrise at 5am and fight to go to sleep. 

Reading or watching TV or movies on Netflix helps me hide from the pain while I’m awake. So, I finished reading Fingersmith last night and didn’t feel like sleeping because it was such an exciting last few chapters. (Review to follow.) Then I got involved in a Netflix series called Land Girls about ladies who helped in the war effort in England. I am not well versed on wars and only want to know what my sisters were doing while men proved whose bombs are bigger. I especially like one of the girls, Bea, I think is her name. She looks like “Rose” from Doctor Who. I’ve already forgotten both actresses names, but honestly they could be twins or at least sisters. Anyway, the show is interesting enough to keep my pain-brain busy while not being adrenaline driven.

Here it is, time to turn on the lights and I’ve barely eaten breakfast? Lunch? Blinner? Part of the problem is my hubby worked nights for so long that his clock is permanently screwed up. My biorhythms adjusted to what is natural to me–bedtime should be about 2am. And then extended to his. Grrr!

Okay, now to write my review.

Blabbering/Wordcount


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I am reading Zen and the Art of Writing by Ray Bradbury. I am on the penultimate chapter in which he says (as he does throughout the entire book) to write. His four words to remember are ‘Work, Relax, Don’t Think.’ Anyway, the idea is that if you don’t write everyday and write a lot you are not doing it right.

 

Meanwhile, in real life, I spent my morning reading email and worrying that I don’t have my laptop working any more. But next to me, in his new recliner is hubby working on his novel. I’m sitting in my new bed with my tablet open, with plenty of programs to work with… Why am I not writing like I am being told by life in the moment? No excuses. So. since I have no goal for the day I will journal until an idea strikes.

 

I mentioned that my laptop isn’t working. It started out that the recharging cord seemed to be blinking out. Maybe it was the connection within the laptop itself. Who knows? Then the internet went out. No web could be found. DH and I went to WalMart to get an ethernet cord. Got it home and found it too short to reach the box. DB had to make a hole in my closet wall so that it would work. Well, all that work and expense (we had to take a taxi as we have no car) gained me a day of work on my computer. When the battery ran down, I couldn’t recharge it any more. Now I am SO missing all my programs like yWriter, Office, RoughDraft, WriteItNow, etc. Is this the universe saying use it or lose it?

 

We haven’t the money to fix my laptop or get another. We can’t even go to Rent-a-Center to get a new one as we just bought this bed and chair. I will have to wait until something is paid off before I can do anything. Boo! Another program I miss is the spell check/grammar check that my laptop has working continually. This program has something like it but it seems to think that contracted words are misspelled. AND I just realized that if a word is misspelled it doesn’t offer a way to correct it. I had mispelled <– but had to figure out for myself that I am a dork and needed to add an ‘s’.

 

What else am I reading? Fingersmith by Sarah Waters. I picked up the hardback, the Audible, the Kindle versions. Kindle now has a way to link with the Audible. It is a really cool feature. I love being able to read along silently during the day and then add the narrator’s voice in my bedtime read and Amazon syncs them both to where I am in either.

 

Speaking of Fingersmith, I am loving the book but found the change of perspective a little jarring. It starts out from Sue’s point of view. After reaching the conclusion of their mission, the author takes us back to relive the same events but from Maud’s viewpoint. I now understand the need to do that but I went through a couple pages thinking I was still in Sue’s head. I need to make sure I don’t do that. By the way, the hardback made that transition obvious. Kindle didn’t have any chapter or asterisks to separate Sue from Maud.

 

I have been hurting a lot lately. I had hoped by summer to feel better but I find I can’t handle the constant weather changes that we have here in Reno no better now than mid winter. I’m so tired of feeling left out of everything!

 

This is a poor time of life for me. I make about $600 a month after medicare is taken out of my pay. If my husband didn’t make a little more than me, we would probably be out on the streets. Even still, we seem to manage. We got rid of our car due to our eyes not being up to driving anymore. My fibro is so painful that I can’t take the bus. It isn’t the riding, it is the standing and waiting for the bus that makes me hurt worse. Instead, if it isn’t within easy walking distance, we take taxis everywhere.

 

I hope I can get healthy enough to live this way. I miss having my own car. And now, I miss having my own REAL computer. I love my Toshiba Thrive Tablet but as I mentioned above, I am missing a lot of programs here.

 

Well, how about that? I just wrote 777 words. Not bad for just blathering. I think I’ll post this on my blog. Now 786. That’s a healthy start towards a good habit, huh? 796 Oh, heck let’s move the word count to over 800, okay?


The ‘Best Exercise’ For Chronic Fatigue Syndrome and Fibromyalgia: Laurie Hope on Qigong :: Health RisingHealth Rising.


Power of Vitamin D
Power of Vitamin D by Sarfraz Zaidi
My rating: 4 of 5 stars

This is, I think, the third book on the importance of Vitamin D in our lives that I’ve read recently. And I have to say this was the best written of them all. Though not as personable as the others, the design with the references at the end of each chapter, made it so much easier to get through. I could use the text-to-speech to save my eyes the strain and merely turn that feature off to page down to the next chapter without hearing long streams of numbers, dates, and names.

This was probably the most conservative of the books. Doctor Sarfraz Zaidi tended to recommend far less Vitamin D than the other authors had. He did admit, though, that there were very few studies of actual Vitamin D toxicity from overdose, which reflected what I read in the other ebooks about the subject. This would be a great book to start with in researching this important vitamin. It really isn’t a vitamin, but a hormone that we are globally deficient in.

On a personal note, one doctor told me I was deficient. The next doctor told me I was too high in Vitamin D. So I feel I have first-hand experience with the lack of knowledge that the medical world has. So I have taken the advice of all three books in upping my supplementation of D. I believe that my experience with ‘fibromyalgia’ is merely my deficiency of Vitamin D. As soon as I can I will have a better view of whether or not this is true. I am being cautious and not taking nearly what was recommended in the other two books. The only variable that concerns me is Summer. I always feel better in the Summer. Hopefully, by next Winter, I will have caught up on the vitamin. Maybe next year I won’t be stuck in bed all the time.

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