Darswords

When you don’t have your medicine, or your medicine isn’t working, and you’re caught in the throes of the diabolical, all-encompassing shitstorm known as a migraine, this could help save you from the depths. It has relieved my mom (fellow migraine sufferer) and I on many occasions. This was a trick she learned from a neurologist in the 80’s when she first became ill and suffered lights-out migraines, for which there were no prescription migraine drugs at the time. (I cringe) Sometimes she would have to endure the pain for days at a time in a dark room or end up in the ER when it could not be controlled. It was a rocky road no doubt, but this trick she learned helped rescue her from some bad ones, and when she shared it with me I was surprised to find it alleviated my terriblest horribliest vomitiest of migraines. And it’s pretty easy…

I’m kind of frustrated and getting angry about all the people who keep bringing up all the other charities or issues that they want attention paid to and they get all bent out of shape that ALS is finally getting attention. I’ve heard the drought brought up and even it’s a white privilege issue but you know what? SO the FUCK what? Cancer always gets the attention. Stand up for cancer is coming up and there will be all kinds of whoopla about cancer or diseases like AIDS with the AIDS walk, both worthy but ALS has never gotten the attention… ever before and unlike Stephen Hawking most people don’t survive very long after diagnosis.

I’m watching someone I love with it now. Her partner and she struggle every day to get the care she needs and she needs 24 hour care. A year ago we thought it was arthritis…